#TUBESDAYTEN

This article shares Pete’s experience of tube feeding under their individual care plan given by a healthcare professional. Please don’t change a care plan without speaking to a dietitian. All views expressed belong to Pete, and do not necessarily reflect those of Talking Tube Feeding.

1. How are you tube fed?

I’m fed through a PEG (a tube fitted directly into my stomach). It’s how I take in hydration, nutrition, and medication now that swallowing safely is no longer possible for me. 

2. How long have you been tube fed?

My PEG was fitted in 2023, but it’s only this year that it’s become something I fully rely on for nutrition and hydration. 

3. What do you wish people knew about tube feeding?

That it doesn’t define you. It’s just a different way of getting what your body needs - like glasses help you see, a tube helps you fuel. It can actually give you more freedom, not less. For me, having a feeding tube allows me to travel without worrying about where or when I'll be able to eat. It gives me peace of mind – and more flexibility to enjoy life. 

4. What do you want to achieve this year?

This year, I want to keep fighting MND - trying different techniques, exploring new medications, and pushing for anything that might help me hold on to quality of life for as long as possible. I’m staying open to possibilities. 

5. Tell us about a decision in your life that has empowered you.

Starting Mind Over MND with my good friend Jonny Holding and sharing my story publicly. It gave me back a sense of purpose and helped me connect with others in a way I never expected. Vulnerability turned into strength. 

6. Do you have any hobbies that help boost your mental health and wellbeing?

Spending time with my family, especially doing fun stuff with my son - anything car-related! I also love connecting with others through content creation. Meditation is a really powerful, underrated tool that’s helped me stay grounded. And I’m a massive football fan - watching a match is one of my favourite ways to switch off and lift my mood. 

7. How do you celebrate the small wins in your tube feeding journey?

By noticing them - like when things feel easier or smoother than the day before. I also give myself credit for adapting and for continuing to live fully, even with a feeding tube. 

8. Who or what has supported you most in your tube feeding journey?

My wife Jess has been my rock - physically, emotionally, and logistically. She prepares my blends and keeps everything running. And our community, Team Evo, has been a huge source of strength.

Team Evo is a movement built around my journey with motor neurone disease (MND), created by friends and family who wanted to turn something incredibly tough into something powerful. 

The name comes from my surname, Eveleigh — but “Evo” stands for more than that. It’s about evolving through adversity, choosing strength, and staying positive no matter what. 

Team Evo is about community, awareness, and action. Whether it’s through fundraising, events, or just sharing the story, it’s a reminder that we’re stronger together — and that there’s always purpose, even in the hardest moments. 

9. What helps you feel connected to others in the tube feeding community?

Seeing people share their stories online - it reminds me I’m not alone in this. That solidarity, even through a screen, really matters. 

10. What’s one piece of advice you’d share with others who are tube fed?

You don’t have to accept the first thing you’re offered. If it’s something you wouldn’t usually eat, question it. You have a right to make informed choices about what goes into your body - being tube fed doesn’t take that away. 

 

If you have any questions or want to know more about tube feeding in general, drop us a message on Instagram @talkingtubefeeding or email us at talkingtubefeeding@uk.nestle.com, we’d love to hear from you!